The dangers of misinformation and miscommunication

I will start this article, I’m fairly confident, the way that no good story has ever started:

I was standing in the line at home affairs last week. I happened to strike up the usual conversation one has at these places; “Why is the line so long? Do you need photos?  (It amazes me that no one ever knows the answer to this question!) Are we going to be here so long that the sun will absorb all of our moisture and when our families come looking for us all that will remain is our tortured souls still hoping for our passports?” Having run out of things to complain about, I asked my fellow brave soul what he did for a living. He was a very high powered investment banker who also had a PhD. I learnt that day that education truly is not enough when ignorance is a dominating plague.

I wish I had told this man I was a struggling actor or an astronaut – but then again he would have had an opinion on that too. “An astronaut? Really? I heard the earth is flat and the moon is Gorgonzola. Is that true? Wait, I know it’s true. So don’t respond.” I didn’t though. Sadly I said I was a HIV researcher and his face darkened. A frown dug its way into his forehead and I could hear the 10 ton piano that was about to fall on me strain in its support. “You know,” he said in a suddenly condescending tone, “I don’t buy this whole ‘HIV’ thing. (He actually did the inverted commas with his fingers, which somehow made the whole thing worse.) I heard that it was the Americans.” I realised by the way he sneered the last part of his sentence that nothing I said was ever going to change his opinion. Valiantly I tried to explain that HIV was a zoonosis and had jumped species on at least 3 different occasions. (Read more about why this doesn’t happen that often.) I spent what felt like an entire lifetime trying to convince him about the scientific evidence. And in the end, the best line emerging from this conversation was his, “Well, you can have your opinion and I will have mine.”

The benefit of having a science degree is knowing that the most popular opinion is not always the right one. Having been trained to question everything, I’ve since understood, is not a skill everyone has. In society, the loudest (most obnoxious!) person is the one who gets heard (once again think Donald Trump) while in science you will get laughed off of a conference stage without any data. This is possibly the root of misunderstandings in science. The people listen to the strongest voice and all the while the white coats are in a corner throwing around statistics. Even when scientists are completely right, some rapper may still convince a few people the earth is flat (see this hilarious exchange between B.O.B and Neil Degrasse Tyson – thank goodness for him!).

Another huge contributor to the hall of misunderstanding and strange theories is the media. Now let me be clear; it is not just the journalists who misinterpret. It is the job of a scientist to simplify and explain their work. One of my science heroines Françoise Barré-Sinoussi (co-discover of HIV), who I was privileged to hear speak, said that at the end of your life you do not remember the journal articles you published or how high their impact number was, but the lives you have changed with the work. If you can’t communicate and translate your work, who will it ever truly benefit? I find that if you can explain your project to your Granny so she understands why you are doing it and how it may help the world, you really understand it yourself.

As a postgrad it’s easy to feel lost; to feel that your work is too far removed from any kind of real-world application. It is easy to think that you’re just doing this to get a degree. However, it’s good to communicate your science for lots of reasons: 1) you can prevent misinterpretation, 2) you can make people feel that they can engage with science and not have their heads explode, 3) you can help scientists in queues at Home Affairs retain their sanity when non-scientists begin to ask questions and 4) you can feel relevant. It’s important to remember it really is our duty to not lock ourselves in a lab, but to reach out: to teach not only the uneducated but the ignorant too. It’s up to scientists to add their voice, otherwise we may be drowned out by the loudest opinions. It’s up to us to build public trust in science. If we are only heard when there is crisis then we are never heard in calm (see this article by Tolu Oni).

 

Scientist news cycle
How science communication works… (www.phdcomics.com)

There have been miscommunications that have done very serious damage too. One is most certainly the notion that vaccinating your child will result in autism (read here why this isn’t true). This has resulted in 100s of unnecessary deaths from measles in small children. Another is that HIV doesn’t cause AIDS, perpetuated by our very own ex-president Thabo Mbeki. Some “facts” are even started out of fear as a rumour: in a small town called Vulindela, wonderful things are being done by the organisation we work with (CAPRISA), to try to reduce unwanted pregnancies and HIV incidence. One of the proposed ways to do this was to insert IUDs into young girls following extensive education on the matter. The programme had to be stopped because one of the girls told all her peers that maggots would grow internally. Naturally teenage girls were then hesitant about IUDs. A far more famous case of misinformation is what happened to Hendrietta Lacks in 1951. With questionable ethical practice, doctors treating this woman took samples of her cervical cancer and made a cell line (cells that are descended from one cell and have the same genetic features) that was able to be kept in culture indefinitely. This cell line is one of the most widely used in clinical trials today; a form of which we use to test the efficacy of HIV vaccines. This woman had no idea what these doctors and scientists were doing and many years later, her family thought that she was still alive because scientists had “immortalised” her cells (Read more about this incredible story in Rebecca Skoot’s novel).

Miscommunications in science can be deadly and disturbing and we have to find ways of changing this. As a PhD student it is my job to pick the hard questions and find answers but, it is imperative that I find ways to explain the hard questions in a way that anyone can engage with them. Solutions can come from the strangest places, even the line in home affairs.

Happiness is not always a four letter word!

I recommend listening to this song by “Watershed – Don’t give up” whilst you read the blog 🙂

Ekunyamezeleni ukhona umvuzo! Those who know what this means  and understand it probably  think it’s a cliché but don’t you think it’s funny how clichés more often than not hit the nail on the head? The above IsiXhosa phrase means, “If you persevere and stay true to your cause then you will be rewarded’’. As I go through social media I notice a lot of entitlement and privilege, but people often don’t appear willing to work hard to achieve a worth-while result. I have always believed that with timely planning, results are assured, and persevering through a plan is not that hard. However, as a MSc student, I have come to realize that even the best-laid plans require a LOT of perseverance and grinding of teeth… You don’t believe me? Well, keep your eyes glued to the screen.

For three months after I registered for my first year Master’s degree, I was busy with my proposal and minding my own business. Things like the background, problem statement, justification and materials and methods of the study. Being the perfectionist that I am, I had everything planned out, from my proposal draft, submitting and correcting any errors, presenting the proposal, applying for an ethical clearance, procurement, starting the trial, collecting data and analysis to finally writing up the results. I had planned to wrap-up my MSc studies within two years as it should; but God (and many, many administrators) had different plans for me. What was to unfold the next two years is something that I’m sure most postgraduates can attest to: there is always an obstacle to fulfilling your plans. Don’t get me wrong, I didn’t say there’s always something that stops you from reaching your goals, I’m just saying there’s always something that delays you from your goals. Either you fail to get funding, you can’t acquire the apparatus needed in your methodology, you struggle to get laboratories to analyze data the way you want, or even the quality of the experimental animals that you get isn’t good enough.

The first six months for me were smooth sailing, writing up, presenting my proposal and getting it approved… So, I wasn’t ready for what was to happen next. I needed to order experimental seeds. Easy, right? Not so much! While waiting for the seeds (after completing tons of paperwork), I stayed busy with writing and reading experimental papers. But then suddenly it was September and I should have started Phase 2 of my project. Was I on track? No! My supplier was wondering where the payment was, and so was I…Lots of hassling and waiting followed… Upon delivery, the proximate analysis was conducted on the seeds to have nutrient specifications for dietary formulations; the results took a month or so to get back. Dietary formulation took its own time; it was not until of my second year registered that it was finalized.

Eggs

It was only at the start of my second year that I could start ordering experimental apparatus. And right then, I received an offer to be on the Professional Development Program (PDP) at the Agricultural Research Council (ARC) in Pretoria. I was very happy to have this opportunity, believing that I would be exposed to great facilities. I moved from Alice, Eastern Cape to Pretoria, quite overjoyed to have “arrived”. But there were demons even in this paradise. It took close to a year to procure feed ingredients and experimental birds… That was the end of year 2. And not a stitch of “real work” completed.

TempBut with the birds in hand, I gritted my teeth and promised myself that I would make this work. To cut the long blog short, I’m now in the final week of my experimental study, doing data collection with a smile on my face. The moral of the blog is that through tolerance and perseverance there is great reward. And the perseverance is not usually something that you can show – it’s often simply a process of being patient, and trying to not scream in frustration or pull out your hair. Even though my Masters didn’t go the way that I planned but I am still grateful for the opportunity that University of Fore Hare and ARC warded me. What most people would consider as chaos in their eyes is simply well orchestrated organized chaos from the almighty in mine.

In a nutshell, be aware that your PhD or MSc won’t go according to your plans. But plan anyway; at least plan on getting some sleep and time to de-stress! The reward will be great, and hopefully you did not burn too many bridges when your plans go belly-up.

Weather the storm